My name is Debbie, I am 45 years old and I have dealt with
the horrible disabling disease called Meniere's Disease since November of 1997.
I started out with ringing in my left ear about six months prior to having symptoms
of the Meniere's Disease itself. I went to three Dr's when I developed the
ringing because
it was so loud that it interfered with my daily living. I even had a hard time
sleeping at night. The Dr's told me that I had tinnitus and there was nothing
that could be done for it.
I was told I would have to just learn to live with it.
Finally, in November of 1998, I was working and started developing some
dizziness
every time I bent over or moved my head too fast from one side to the other
or up and down. I worked at this job for about nine years. I was a home health
aide and my job required a lot of traveling.
I was out of town the day that the dizziness started. I noticed at a patient's
home while I was doing some dressing changes that every time I bent or moved
my head I got dizzy. I had never been dizzy before in my life and it really
concerned me. I left the patient's home and had about an hour's drive before
I got back to the office where I worked. I noticed that the whole time that
I was driving in that I could not focus on anything or move my head very fast
or I would get dizzy.
It was about three in the afternoon and I just thought that maybe I was dizzy
because I hadn't eaten anything all day because I had been so busy that day
and running behind. I finally made it back to the office and they had a big
dinner that day where everyone brought in pot luck for Thanksgiving. I got out
of my car and was thinking that I would go in and eat something before I did
my paper work for the day to see if it would get rid of the dizziness. As I
was walking from the car towards the office door, I noticed that I felt an
imbalance
and couldn't walk a straight line.
I was really beginning to get scared. When I got to the door and walked in,
there was a friend of mine sitting at her desk and had been watching me walk
towards the building. She asked me if I had been nipping the bottle and laughed
at me. She thought that I was just putting on an act and being silly. I told
her that there was something wrong with me and explained to her what was happening
with me. She asked me if I felt sick at my stomach. I told her no. I then tried
to hurry back and get something to eat.
I ate gobs and gobs of food hoping that it would take care of the dizziness.
After stuffing myself, I went back out to my car to get my paperwork and get
it done so I could go home. The dizziness kept getting worse. As I got back
to the door again, I couldn't even focus on the handle to open the door and
instead of walking up the sidewalk I was wandering around on the grass. I managed
to get the door opened and my friend, which is an R.N. meet me at the door this
time and told me to stop it because I was starting to scare her.
I told her that I wasn't fooling around and that something was really wrong.
By this time she knew I was serious and asked me again if I felt sick at my
stomach. I told her no and then tried to show her by turning my head when I
felt the most dizzy.
The next thing I knew is that they were carrying me back to the bathroom and
holding my head up over the toilet so I could throw up. My whole world starting
spinning out of control and I couldn't even hold my own head up over the stool
to vomit. The boss, which is an R.N. also came in and picked me up and carried
me to his truck and took me to a Dr's office there in town. The whole trip there
he was holding me up with one hand and driving with the other. I couldn't sit
up on my own. By that time I had tossed everything that I had eaten and had
dry heaves so bad that I thought I was going to die.
I laid on the table at the Dr's office for about three hours before the spinning
stopped. The Dr. told me that I had an inner ear infection and gave some antibiotics
along with meclizine for the nausea and sent me home. My daughter came and got
me from the Dr's office. I was totally drained for about three days after the
first attack. I noticed that my ear felt like someone had filled it full of
water and put a plug in it and the ringing got ten times worse as if it wasn't
bad enough to start with. I finally went back to work after taking off for four
days.
About a week and a half later after getting off work I was standing in the laundry
room folding my clothes and my daughter happened to be here. I noticed that
I was beginning to feel a little funny and my ear started ringing out of control.
All of a sudden my world started spinning again and I fell to the floor. My
daughter wanted to call the ambulance but I refused and told her to just get
me something to throw up in and please leave me alone. I laid on the floor for
about two hours this time heaving my insides out before this attack left and
I was able to get up and walk to the bed. After the second attack, I really
began to get concerned.
This started my numerous visits to different Dr's. and ENT's. I won't go into
detail on how many attacks or how many Dr's that I went to see.
My life was a living nightmare and I was very depressed and confined myself
to the house as much as possible. I was afraid to even go out in public because
I never knew when an attack was going to hit. They would come with no warning.
I ended up in the floor at some stores while shopping and ran off the road while
driving once. I finally decided that it was unsafe for me to drive.
Finally a friend told me about a Dr. in Springfield, Mo. that was really good
and she knew that he had the answer for me. By this time I had lost all faith
in any Dr. but decided to give it a try. I had to pay out of my own pocket for
this Dr. because he wasn't a provider on my insurance plan. This was in May
of 1998. The Dr. ran a bunch of tests including MRI's Cat scans and the whole
nine yards. He then told me that he could see nothing wrong on any of the tests
and ruled out any tumors and said that there was only one thing that it could
be. He told me that he thought that I had Meniere's Disease. He told me that
he didn't treat Meniere's but had a good friend that had his practice in Kansas
City, Mo. and has had great success treating the disease. He sat me up an appointment
with the Dr. which was about a five hour drive from where I lived.
For the first time, since the drop attacks started I felt a little relief. I
went to see the Dr. and he ran numerous tests also and confirmed that I did
have Meniere's Disease. He then explained all the treatments that he offered and told
me that he had great results in treating Meniere's and stopping my vertigo and
drop attacks. He first offered a surgery called shunt where they went in and
cut out a small piece of my skull behind the left ear and inserted a tube into
the sac that isn't draining properly. The tube is suppose to drain the fluid
to the spinal column. After the surgery, I went home with high hopes. He told
me that there was a 66% chance of it working. For the first two weeks I had
a very bad balance problem after the surgery which was normal. I had no drop
attacks for about six weeks and was beginning to enjoy life again. The hearing
in my left ear is very bad. I lost almost 75% of my hearing.
Then one day I got out of bed and started off to work again as usual. I had
put the drop attack nightmare behind me. All of a sudden my world started spinning
out of control again and I fell to the floor again. This time it lasted for
over four hours. I heaved so much that my whole body hurt. I called the Dr.
back and told him the next day what had happened and he told me to give it a
little more time. The vertigo and drop attacks came back full force over the
next several weeks, only ten times worse than they were before the surgery.
My life was in an uproar again and my nightmare had returned.
I then went back to the Dr. and he said that scar tissue had grown over the
tube and that was why it stopped working. He then started me on Gentamycin injections
to kill out the balance nerve in my inner ear. This was a nightmare in itself.
When the nerve is killed out then the other side of your brain has to learn
how to work without using the other and the imbalance is horrible. I had three
injections into the inner ear and still having the attacks and vertigo. He told
me that it may take as many as seven injections before the nerve was completely
destroyed. He had to give the injections in very small doses to keep from destroying
any more hearing that I had left. I had to take one injection then wait for
several weeks to see how it worked. If there was no success then I had to go
back for another one. I finally gave up after the third injection. I would schedule
an appointment but end up canceling it before the visit. I did this several
times. I felt as if my life wasn't worth living anymore and that nothing was
going to help.
I then happened to be looking in a site on the internet one evening on Meniere's
after getting my strength back after having a bad vertigo and drop attack. I
ran across a story about someone that also had Meniere's and was looking for
help also. She had mentioned a site that she had found on someone selling natural
supplements but didn't have the money to invest into it and was wondering if
anyone had any information for her to help with her Meniere's.
She just happened to give the e-mail address of the site that was selling the
supplements. I decided to check into it but had no intention of buying natural
supplements. I had taken Valium, Prednisone, Meclizine, diuretics and many more
with no help.
I read the story of the lady that was advertising the supplements and her husband
also had Meniere's Disease. She told how the supplements had stopped the vertigo and
symptoms of Meniere's Disease for her husband. I was very skeptical but decided to send
her an e-mail and ask about the supplements. The lady, whose name is Karin,
got back to me with-in minutes. We exchanged e-mail for some time and then she
asked for my phone number where she could call me and explain more about it.
I gave her my number and she called with-in a few minutes. She talked to me
for about an hour and told me how great the products were and that they were
100% money back guarantee.
I was very skeptical and really didn't want to try them and knew that they probably
wouldn't work but thought that I couldn't lose anything if I could get my money
back. She told me exactly what I needed and how many to take. My shipment arrived
with-in a week.
I started on the the products in December of 2001 and have taken them faithfully
since. The first few weeks of taking the supplements, I felt kind of like I
had the flu and wanted to quit. Didn't seem like the dizzy spells or vertigo
was getting any better. Karin had already told me that my body would go through
a detox stage and that I needed to continue taking them. After being on the
products for about four weeks I noticed that my dizzy spells were gone and the
vertigo had stopped.
I have not had one dizzy spell,
vertigo or drop attack since the second week
in January of 2002.
I would encourage anyone out there with Meniere's Disease to try this product. I have
my life back and have more energy than I have had since I was a teen-ager. I
won't go one day without the supplements. I still can't believe that I went
through all the surgery and treatments when all I needed was something natural
that my body was lacking and being deprived of. I still have a little ringing
and the hearing will not come back. The ringing has even went down to where
I can live with it now. I can even at times not even notice that it is there
at all. These products are amazing. Anyone out there that is living with this
horrible disabling disease, PLEASE give this product a chance!!!!
Additional Resources
If you would like to know more about the system we talk about throughout the
site,
please use this link to go to the Meniere's System Information
page.
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Newsletter you can learn more about it, or sign up for it, by
Clicking Here.
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